Autism
Family-Focused Information and Tools
Handouts
Links for More Information
Spanish Language Information
Organizations
Research Participation
Handouts
My Child’s Map to Services
Family Voices of WA,
WA State Title V and “other” Washington State Parent organizations worked
together to create My Child’s Map to Services a template for families. The tool
serves as a quick reference guide for families just receiving a new diagnosis of
Autism for their child. No parent is ever prepared to hear that a child is
anything other than happy and healthy, and a diagnosis of autism can be
particularly scary. This tool is for parents wondering about what to do next.
There is so much information, good and bad, available on Autism now that we
wanted to simplify things for families just beginning their journey. It is also
available in Cambodian, Spanish and Korean.
Autism and Your Child
Handout from the American Academy of Family Physicians
http://familydoctor.org/634.xml
Autism Spectrum Disorders (Pervasive Developmental Disorders)
National Institute of Mental Health. Detailed booklet that describes symptoms, causes, and treatments, with information on getting help and coping.
www.nimh.nih.gov/publicat/autism.cfm
CDC Autism Fact Sheet "Learn the Signs. Act Early"
The Autism Fact Sheet provides a one-page tool for clinicians to share with families, to raise awareness about developmental delay, which may be related to autism or other developmental disabilities. The fact sheet encourages parents who have concerns about their child’s development to speak with their doctor. Translated into multiple languages to reach underserved populations in CA, by the USC UCEDD faculty, staff, and trainees. The USC UCEDD completed an extensive review process in developing these translations, consulting both parents and health care professionals.
- The Autism Fact Sheet is available in Arabic, Armenian, Farsi, French, German, Italian, Japanese, Korean, Mandarin, Tagalog, Thai, and Vietnamese from: http://uscucedd.org/index.php?option=com_content&view=article&id=455&Itemid=426.
You can also contact Cary Kreutzer, MPH, RD at ckreutzer@chla.usc.edu to obtain copies or if you have any questions.
- English and Spanish versions of the fact sheet are available from the CDC at
www.cdc.gov/ncbddd/actearly/downloads.html.
KidsHealth Autism Spectrum Information from the Nemours Foundation
For Parents
For Teens
For Children
NICHCY Autism Fact Sheet #1
National Information Center for Children and Youth with Disabilities (NICHCY). Characteristics of children with autism, the impact of autism on a child's education, and resources. 5 pages.
Pervasive Developmental Disorders NICHCY Fact Sheet # 20
National Information Center for Children and Youth with Disabilities (NICHCY) (Jan. 1998, resources updated Oct. 2003) 26 pages. Covers five specific disorders within this category, including autism, with the major focus on Pervasive Developmental Disorder Not Otherwise Specified (PDDNOS), also called PDD.
www.nichcy.org/InformationResources/Documents/NICHCY%20PUBS/fs1.pdf
Understanding Autism Spectrum Disorders (ASDs)
Information booklet from the American Academy of Pediatrics - Single copy $2.95 at AAP bookstore
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Links for More Information
Autism Information Center
National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control. Resources for Families, includes some information in Spanish.
www.cdc.gov/ncbddd/autism/
Family Village Website Autism Pages
Waisman Center, University of Wisconsin. Informational resources on autism, internet support groups, adaptive products and technology, adaptive recreational activities, education, worship, health issues, disability-related media and literature. Links to some information in Spanish and French.
www.familyvillage.wisc.edu/lib_autm.htm
Medlineplus: Autism
National Library of Medicine and the National Institutes of Health
National Information Center for Children and Youth with Disabilities (NICHCY)
NICHCY website provides information on disabilities and disability-related issues for families, teachers, and other professionals. Some resources in Spanish. NICHCY staff will also give information and referrals over the phone (800-695-0285) or by email nichcy@aed.org. www.nichcy.org.
Autism articles at:
www.nichcy.org/Research/Basics/Pages/Disabilities.aspx#autism
TEACCH - Treatment and Education of Autistic and related Communication handicapped CHildren
University of North Carolina at Chapel Hill. Includes articles in Spanish
www.teacch.com
Spanish Language Resource
Manitas por Autismo: Spanish Autism Spectrum Disorder Website for Families
Created by families for families, provides information in Spanish about Autism Spectrum Disorders (ASD). A chat room and forum area are under development. These will be moderated by parents of children with autism. Two doctors and an advocate will help to answer questions. Sponsors include the Centers for Disease Control and the National Dissemination Center for Children with Disabilities. Go to ww.manitasporautismo.com:80/
Organizations
Access for Autistic Youth Website
American Cultural Exchange. Information in English, Spanish, Korean, Vietnamese, Russian, Chinese, Arabic and Somali. Much of the information is focused on King County, but has good Washington State and national resource lists as well. Phone: 1-800-328-8476 or 206- 217-9644.
www.cultural.org/aay/
Autism-PDD Resources Network
www.autism-pdd.net/
Autism Society Of America
Goals of ASA include education, advocacy, public awareness efforts and the promotion of research. Information and referral on the autism spectrum to parents, professionals, and members of the general public. 1-800-328-8476
www.autism-society.org/
Research Participation
Interactive Autism Network (IAN) - Online
Autism Registry
Familes of children with autism
spectrum disorders can participate in a national online research project or be
linked to other local and national research projects for which they qualify.
Housed at the Kennedy Krieger Institute in Baltimore, MD.
http://www.ianproject.org/
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