Down Syndrome
Provider-Focused Information
NEW! Understanding Down Syndrome Diagnosis
http://lettercase.org/
This informational booklet, intended for use when delivering a Down syndrome diagnosis, is now available free to medical professionals. The booklet was created with input from the American College of Medical Genetics, the American College of Obstetricians and Gynecologists, and the National Society of Genetic Counselors, and is meant to provide up-to-date, balanced information about Down syndrome prenatal diagnosis.
Primary Care of Infants and Young Children with Down Syndrome
American Family Physician. By Rebecca B. Saenz, M.D. January 15, 1999
www.aafp.org/afp/990115ap/381.html
Primary Care for Children and Adolescents with Down Syndrome. Davidson MA. Pediatr Clin N Amer. (2008) 55:1099-1111.
Weight Management in Down Syndrome
Joan E. Medlen, R.D. Disability Solutions. November/December, 1997 Volume 2, Issue 4, p. 10-13; January/February, 1998 Volume 2, Issue 5, p. 9-12; March/April, 1998 Volume 2, Issue 6, p. 11-14
www.altonweb.com/cs/downsyndrome/index.htm?page=obesityab.html
Adults with Down Syndrome
- Health care management for adults with Down syndrome. Smith DS. American Family Physician.
2001 Sep 15;64(6):1031-8. Link to abstract Link to article
- Health care concerns and guidelines for adults with Down syndrome. van Allen MI et al. Am J Med Genetics. 1999 Jun 25;89(2):100-10. Link to abstract
National Down Syndrome Society Website
Information for professionals and consumers. History and definition of Down syndrome, discussion of the genetic factor, and links to resources. Includes information in Spanish.
1-(800) 221-4602
www.ndss.org
Bright Futures: Mental Retardation
National Center for Education in Maternal and Child Health
In Bright Futures in Practice: Mental Health - Volume 1, Practice Guide, 2002, 10 pages.
www.brightfutures.org/mentalhealth/pdf/bridges/
retardation.pdf
March of Dimes Down Syndrome Fact Sheet for Professionals
www.marchofdimes.com/professionals/681_1214.asp
National Medical Library
MEDLINE/PubMed. The world's most extensive listing of scholarly medical journal articles.
www.ncbi.nlm.nih.gov/sites/entrez?db=PubMed
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