Diagnoses and Conditions
Medical homes are built on respect, communication and effective partnerships between patients and their families and health care providers.
However, it can be difficult for both families and providers to know how to quickly find the diagnosis-specific information they need to make sure the child or youth and family are getting their needs addressed.
This section connects physicians and other health care professionals with care guidelines, patient handouts and other information that supports comprehensive care for patients and families.
Patients and families can find information written for them as well as find out what guidelines are available for health care professionals. (These resources cannot substitute for the advice of your own health care provider, but we hope that the information will help you learn more about your or your family member’s condition and make talking with your health care provider easier).
Six diagnoses and conditions are currently covered in depth:
Other Diagnoses and Conditions and Search Strategies for Other Conditions can help you locate key care guidelines, review articles, and information resources for monitoring and managing the health of individuals with specific childhood-onset diagnoses and conditions during pediatric and adult years.
We welcome suggestions for other conditions/diagnoses to cover on this website – let us know your ideas at email@example.com
What You Will Find in the Diagnoses and Conditions Section
For each of the 6 highlighted diagnoses or conditions you will find the following 7 categories of information:
- Definition of the disorder and further information such as prevalence, incidence, and major symptoms
Clinical Care Guidelines
- Practical guidelines for primary care providers to assist with diagnosis, treatment and/or appropriate referral for the specific condition.
- Families and other professionals working with families may also be interested in this information although some of the language may be technical.
- Information beyond the guidelines, for example:
- Articles and other references
- Information on associated conditions
- Nutrition and growth information
Provider Forms and Tools
- Practical resources for professionals to streamline and inform patient management
- E.g. disease management charts, growth charts, health care guideline charts, nutrition charting, diagnosis-specific toolkits
- Note: we also suggest reviewing family forms and tools section for other resources to assist in patient care
- General and more extensive information on specific diagnoses and conditions for patients and families
- Handouts and brochures created for patients and families
- Website links to other, often more extensive, information written for families
Family Forms and Tools
- Resources created for patients and families - e.g. forms to help you record symptoms, address anticipated problems as they come up, etc.
- Note: Families may also want to review provider forms and tools section for other resources
For Services in Your Community
- WithinReach (formerly Healthy Mothers Healthy Babies) ASK Line – Washington State ‘hot-line’ for families and/or providers (1-800-322-2588)
- Provides information on locating and accessing a wide variety of resources - nutrition resources, health insurance information, children with special needs, immunization, breastfeeding support, child development, sib support and much more
- Diagnosis specific organizations –
- Contact information (phone, website)
- Primarily organizations who provides services statewide OR can provide referral information no matter where in the state someone lives
- Some regional organizations are also listed, especially if we have not identified a statewide resource