Stories and Conversations
Sometimes it's helpful to hear directly from families and health care providers about their personal experiences with medical homes or meeting special needs. The stories below focus on medical homes, being a parent or family member with a child or youth with special health care needs, or being a youth with special health care needs transitioning into adult life, including adult health care services.
Why I Appreciate My Children's Medical Home
by Kate Orville, Parent and Co-Director, Medical Home Leadership Network
A parent talks about her children's medical home and what the physicians and office staff do to make the relationship a rewarding one for the family.
Medical Home Team Member: Ashley Peterson
Read about how one mom became a parent advisor for her child's medical home and how the clinic used family feedback to become more family-centered. This story is from the Institute for Family-Centered Care's "Profiles of Patient and Family Advisors and Leaders" series.
Your Are An Adovocate for Your Child with Special Health Care Needs!
A one-pager, written from one parent to another, on tips for being the best advocate for your child with special health care needs. From Family Voices.
Stories from Dads in Washington State
The Washington State Fathers Network has collected some wonderful stories from dads who have children with special health care needs. "The men unabashedly share with us their tears and depression, fears and pain, and ultimately the love, care and understanding gained through the extraordinary relationships they have with their children."
A community where parents of children and teens with an ongoing health condition or special need can read and tell honest, hopeful stories about day to day life, coping during crisis, staying strong, or getting emotional support.