Purpose
This page provides a list of links to data sources that can be used by the Medical Home Leadership Network (MHLN) teams and others to use in program planning, writing grants, and tailoring presentations to community and state groups.
What You'll Find
Data sources that provide valuable Washington State or County population characteristics, service use and/or needs of one or more of the following groups:
- children and youth with special health care needs and their families
- children and youth in general
- and people with disabilities and special health care needs.
In addition, some links to national resources have been included to provide helpful context for developing grants related to medical homes for children and youth with special needs.
We welcome additional suggestions or comments! Email: info@medicalhome.org
Links
Medical Home Data Monograph – Medical Homes for Children in WA State
Washington State Department of Health, Office of Maternal and Child Health, May 2007
http://www2.doh.wa.gov/cfh/mch/documents/MedHome.pdf 
The Health and Wellbeing of Children: A Portrait of States and the Nation
Overview of broad health characteristics for
children and brings together national and state-level data. The chartbook, produced by
the Maternal and Child Health Bureau in 2009, is based on data from the
National Survey of Children's Health in 2007 and focuses on measures of
children's physical and mental health, health care, and general
well-being as it relates to their families, schools, and neighborhoods.
Information for each state, easy-to-follow bar graphs, and breakdown
analyses by race and ethnicity are included.
County and State Specific Data on Children and Youth with Special Health Care Needs: Washington State Report
From the Washington State Department of Health, Children with Special Health Care Needs Program and the Center for Children with Special Needs. Published 2005.
www.doh.wa.gov/cfh/mch/cshcn_WAdata.htm
- County Profiles: include county-specific information about children and youth with special needs-- population data, service utilization, hospitalization rates and more
- State Report: includes estimated number of children and youth with special health care needs, social and economic characteristics, services used by this population, unmet service needs, risk behaviors among adolescents with disabilities.
Data Resource Center (DRC) for the National Survey of Children with Special Health Care Needs (CSHCN)- Accessing data on child health in your state just got easier
The redesigned Web site of the DRC point-and-click access to data findings from the National Survey of Children's Health and the National Survey of Children with Special Health Care Needs in one integrated browsing and search tool. Downloadable state-level data profiles with data on over 200 child health indicators are accessible for use in presentations or reports, allowing users to promote a higher-quality health care system for children, youth and families. For more information, visit the DRC Web site.
www.childhealthdata.org/
County Level Data from the Social Security Administration
SSI recipients by state and county in 2009
www.ssa.gov/policy/docs/statcomps/ssi_sc/2009/wa.html
Data for Tracking Youth Transitioning to Adulthood
Measuring and monitoring youth transition experiences - data sources available at Healthy and Ready to Work website. http://hrtw.org/hrtwu/data.html
Back to Top State Maternal and Child Health Block Grant
Washington State's application to the US Maternal and Child Health Bureau documenting recent Dept. of Health sponsored activities and upcoming plans to improve services for CSHCN and other maternal and child health populations.
www.doh.wa.gov/cfh/mch/BlockGrant.htm
Other Washington State Department of Health Data Sources
Kids Count
State-specific reports or searchable by topic. Lots of data on the educational, social, economic and physical well-being of children. From the Ann E. Casey Foundation.
www.aecf.org/kidscount/sld/
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Achieving Success for all Children with Special Health Care Needs
Complete draft of the 10 year national action plan for children with special health care needs for each of the six national performance measures.
Family Voices
Website created by family, friends, practitioners and caregivers for children with special health care needs. Site includes information, advocacy topics and resources.
www.familyvoices.org/
US Census Bureau
Office of Financial Management: County and City Data for Washington
County specific information on the population, the economy, county government finance, and other collection of general information.
www.ofm.wa.gov/localdata/default.asp
Office of Financial Management: Health Care
Washington health facts from the OFM.
www.ofm.wa.gov/healthcare/default.asp
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Healthy People 2020
The nation's health blueprint for the first decade of the 21st century spells out health indicators and goals, from the U.S. Department of Health and Human Services.
www.healthypeople.gov/
Child Health USA 2007
Population characteristics, health status of infants, children and adolescents, health services utilization, state- and city-level data, and MCH measures and goals
www.mchb.hrsa.gov/chusa07/
Child Stat
Federal Interagency Forum website for child and family statistics -- reports, publications and other statistical information.
www.childstats.gov/
FedStats
Access available statistics from over 100 Federal agencies.
www.fedstats.gov/
HealthData.gov
HealthData.gov is a one-stop resource for the growing ecosystem of innovators who are turning data into new applications, services, and insights that can help improve health. It is a public resource designed to bring together high-value datasets, tools, and applications using data about health and health care to support your need for better knowledge and to help you to solve problems. These datasets and tools have been gathered from agencies across the Federal government with the goal of improving health for all Americans. Check back frequently because the site will be updated as more datasets and tools become available.
www.data.gov/health
Health Indicators Warehouse
Health Indicators Warehouse (HIW) is a new resource serving as the data hub for the HHS Community Health Data Initiative. It contains standardized health outcome and health determinant indicators along with associated evidence-based interventions, which can be easily displayed, and will benefit a broad variety of users.
http://healthindicators.gov/
Incidence / Prevalence Data
Prevalence of Four Developmental Disabilities Among Children Aged 8 Years --- Metropolitan Atlanta Developmental Disabilities Surveillance Program, 1996 and 2000
MMWR Surveillance Summaries - January 27, 2006 / Vol. 54 / No. SS–1
Data on mental retardation, cerebral palsy, vision and hearing impairments.
www.cdc.gov/mmwr/preview/mmwrhtml/ss5501a1.htm?s_cid=ss5501a1_e
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