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This page was last modified on : 11/02/2011

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Gene Clinics

Medical genetics information resource developed for physicians, other healthcare providers, and researchers.  Includes expert-authored disease reviews, international directories of genetic testing laboratories and genetics and prenatal diagnosis clinics, and educational materials for providers about genetic services and medical genetics terms. Housed at the University of Washington, funded by the National Institutes of Health.

www.geneclinics.org/

 

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The Family Center on Technology and Disability

Disability Organizations: Links to Useful Sites (diagnosis/condition specific)

www.fctd.info/resources/sourcesLev2.php?category=1084

National Organization of Rare Diseases (NORD)

National clearinghouse for information about rare diseases and syndromes. Information on symptoms, causes and treatments of over 1,100  rare diseases.  A rare disorder affects fewer than 200,000 people in the United States.

www.rarediseases.org/

Disability Specific Fact Sheets for Families and Teachers

From NICHCY (in English and Spanish / Espanol)

http://www.nichcy.org/DISABILITIES/Pages/Default.aspx

 

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