Resource Web Links
Disability Specific Web Resources
Washington
National
Washington State
Gene Clinics
Medical genetics information resource developed for physicians, other healthcare providers, and researchers. Includes expert-authored disease reviews,
international directories of genetic testing laboratories and
genetics and prenatal diagnosis clinics, and educational materials for providers about genetic services and medical genetics terms. Housed at the University of Washington, funded by the National Institutes of Health.
www.geneclinics.org/
National
The Family Center on Technology and Disability
Disability Organizations: Links to Useful Sites (diagnosis/condition specific)
www.fctd.info/resources/sourcesLev2.php?category=1084
National Organization of Rare Diseases (NORD)
National clearinghouse for information about rare diseases and syndromes. Information on symptoms, causes and treatments of over 1,100
rare diseases. A rare disorder affects fewer than 200,000 people in the United States.
Disability Specific Fact Sheets for Families and Teachers
From NICHCY (in English and Spanish / Espanol)
http://www.nichcy.org/DISABILITIES/Pages/Default.aspx
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