Resource Web Links
General Disability & Chronic Illness
Washington
National
 Washington State
Center on Human Development and Disability
University of Washington center focusing on improving the lives of people with developmental disabilities and their families, through a comprehensive array of research, clinical services, training, community outreach, and dissemination activities.
http://depts.washington.edu/chdd
Center for Children with Special Needs
Information specific to Washington State as well as diagnosis-specific health information, tools to support families of children with special needs and care providers.
http://cshcn.org
Child Health Notes
Brief newsletters that support the early identification and management of special health and developmental concerns for children.
www.medicalhome.org/leadership/chn.cfm
Seattle Children's Hospital
Information for families including preparing your child for surgery and other tips
www.seattlechildrens.org
Children with Special Health Care Needs Program - Department of Health
Description of CSHCN program services as well as links to other useful programs and websites.
www.doh.wa.gov/cfh/mch/CSHCNhome2.htm
Pathways Awareness Foundation
Materials to support early detection and early therapy for children with physical movement differences
www.pathwaysawareness.org
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 National
American Academy of Pediatrics- National Center of Medical Home Initiatives for Children with Special Needs
The National Center of Medical Home Initiatives for Children with Special Needs provides support to physicians, families, and other medical and non-medical providers who care for children with special needs so that they have access to a medical home. Extensive website. Center has inhouse expertise as well as national contacts for all areas of care in community setting.
www.medicalhomeinfo.org
Developmental-Behavioral Pediatrics Online Community
www.dbpeds.org
Family Village
A Global Community of Disability Related Resources
www.familyvillage.wisc.edu/index.htmlx
National Organization for Rare Diseases
www.rarediseases.org
National Information Center for Children with Disabilities (NICHCY)
Information on specific disabilities as well as clearinghouse for information on IDEA (the nation's special education law) No Child Left Behind legislation (as it relates to children with disabilities), and research-based information on effective educational practices.
www.nichcy.org
The Genetic Alliance
www.geneticalliance.org
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